I’ve heard that line a couple more times then I probably needed to. “We have an aggressive treatment for an aggressive cancer”
After the initial acceptance, this has definitely been one of the hardest parts. Not knowing the right path. Not knowing who to “trust” when you have differing medical opinions on the best course of action. I had some truly crippling days trying to make a decision that could quite literally be life or death….. or, perhaps have no real impact on the outcome. No one knows. This cancer quite literally happens a handful of times a year in the US. There isn’t a big body of research to draw upon for Large Cell Neuroendocrine Carcinoma of the Cervix.
Part of the tumor was removed on the first day of school, before we knew the full diagnosis. They didn’t get it all. And it’s grown fast and furiously since. Do we take it out all out now that we know what we’re dealing with? Do we start the medical/chemo route based on how untraditionally this cancer is in its spreads and tendency to travels to other parts of the body? The answer was easy when it was thought to be typical cervical cancer but was complicated dramatically when the neuroendocrine diagnosis came in.
The thought of sitting around until today (November 9th) when a hysterectomy was scheduled for and then having to heal for 4-6 weeks before starting to treat the underlying systematic disease sickened me. I felt like the walking dead. How could I do nothing???
In the end, some of the decision making ended up being taken out of our hands as we learned the tumor was growing to fast to safely remove- so started the chemo.
The plan as it stands today is 4-6 round of chemo (dependent on how I’m responding) 3 days a week on a 3 week basis. 5 straight weeks of radiation 5 days a week, two weeks concurrent with chemo. After that, hopefully, we go back to the original August plan of a radical hysterectomy. And then, by god, hope we got this MF’er while it was down.
This cancer, unfortunately, has a very high rate of reoccurrence. Specifically in the lungs, liver, brain. It’s spread through the hormone receptors or some shit I’m not close to being smart enough or chemoless-brained enough to explain.
But despite all that. I can tell you what my plan is. To take my sexy, platinum, pixie cut, cancer free self to the first day of school in September. To hug my babies as they start their first day of kindergarten and Grade 4 and be so thankful for the year of life I’ve been given.