….And another month comes to a close. If you’d ask me any other year I’d be so excited to flip the calendar, sipping on seasonal lattes while having settled back into our school routine, to be that much closer to Christmas! But this year, time is passing by too fast. The timelines given to me by my Dr. echoing with each passing day. It’s scary. Especially as I think the cancer is progressing faster than they expected based on the symptoms I’m having (constant nausea and vomiting, sleeping a lot.) I’m a fit, vibrant 37 year old, this shouldn’t be happening. But, alas, it is.
Brief Medical Update:
This month I have had a liver biopsy (ouch) had another CT, and started an immunotherapy drug, which has a very low probability of working, but currently seems to be our only option. Busy investigating and trying some alternative methods as well. We’ve always had a saying at home, Read’s never give up, and, well since that’s our family motto we’ve decided I’ll go down fighting. I go for my second dose of immunotherapy this week (it’s bi-weekly) and I’ll keep playing with my anti nausea meds in hopes of finding something that helps me get through the days.
In 5 weeks or so we’ll rescan to see if the new treatment is having the desired impact. If it is, we keep going until it stops working, if it isn’t, back to the drawing board.
Update on the Kids:
The twins didn’t skip a beat starting Kindergarten and Ry is enjoying French (which starts in Gr 4) which she anticipated hating. The girls have started gymnastics, Ry started Cubs (and has spent the weekend at her first overnight camp which was a blast!) and the twins start hockey fundamentals this week. It’s busy! A year after we cracked our first book, Ry and I are starting book 7, the last of the Harry Potter series. I have cherished this journey, and am so excited she’s super geeked out about Harry like I was…(am?)!
Recently we had another difficult chat with her, letting her know that Moms cancer had spread, and it wasn’t good. It’s in these moments that it’s so hard to stay positive. To be happy. When you see your child’s heart break, a sweet innocent little girl. It’s just a fucking sin is what it is. 💔
On a brighter note— My eyebrows are back (and on point.) But more seriously, we continue to be overwhelmed with support from family, friends and strangers alike. In big and little ways. I can’t begin to list them all, but know every text, every card, the thoughtful words and memories shared, the delicious apple crumble, it all means so much to us. I got a few messages last week during the Terry Fox runs happening across our beautiful country with pictures of kids running bibs saying they were running for me (and three at home that said Mommy.) Oh man, that one really grabs you by the cockles!
And for the record- no, your outreach is never a bother, or interfering.
I wanted to take some space here to once again recognize and thank the Mulloy- Huehn family. They hosted their 3rd annual “Cornhole for Cancer” tournament last weekend and chose to donate the proceeds to our family. This event, and the support and generosity of all who attended or donated, left us, speechless (which I told them hadn’t happened since the day I met Kelly Gruber 25 years ago!) It is such an amazing and fun way to remember and honour their sister Shelly, who was taken way to early as a result of this horrific disease. So, for all who participated, many, many thanks from the bottom of our hearts ♥️ 💕